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Useful Links

Below are links to some resources you may find useful:

British Association for Counselling and Psychotherapy acts in the interest of the public as a professional, relevant, credible and communicative organisation for the counselling professions, bound by a common purpose, underpinned by clear philosophy and transparent values. They will advocate the role and relevance of the practice of the counselling professions in improving psychological well-being and mental health, and promoting social justice, in our contemporary and diverse communities.

Cancer Research funds scientists, doctors and nurses to help beat cancer sooner. We also provide cancer information to the public.

CQC are the independent regulator of health and adult social care in England. They make sure health and social care services provide people with safe, effective, compassionate high-quality care and we encourage care services to improve.

DNACPR helps to protect patients and improve medical education and practice in the UK by setting standards for students and doctors. They support them in achieving and exceeding those standards and take action when they are not met.

Dying Matters is a coalition of 32,000 members across England and Wales which aims to help people talk more openly about dying, death and bereavement, and make plans for the end of life.

eHospice  is a globally run news and information resource committed to bringing you the latest news, commentary and analysis from the world of hospice, palliative and end of life care. Aimed at anyone with a professional or personal interest in palliative care, eHospice offers a single point of access to intelligence and good practice from around the world, with the aim of helping to improve patient care globally. It brings together the expertise and experience of the global hospice and palliative care community and helps reduce the isolation felt by many people receiving or providing end of life care.

End of Life Care is care which supports those with advanced, incurable illnesses to live as well as possible before they die. It includes support for a person’s family and those important to them. End of life care involves a palliative care approach.

Hospice UK supports the development of hospice care in the UK and internationally. By supporting hospice professionals, championing the voice of hospice care and promoting clinical excellence, they help hospice care providers to deliver the highest quality of care to people with life-limiting or terminal conditions.

Lipoedema UK was founded in 2012 by women with Lipoedema, and the Lymphoedema Service at St George’s Hospital in London. Their focus is to educate doctors, health professionals and the public about Lipoedema and it’s symptoms, so it may be diagnosed and treated earlier.

Lipoedema Ladies  is a UK based support group, both on facebook, online and physically. They are a fun and informative group of Ladies with Lipoedema.

Lymphoedema Support Network  (LSN) takes the lead role in educating and supporting other patients with this condition by providing a high standard of information and promoting self-help. Since it’s inception in 1991, when there was very little information or help available for patients, the LSN has evolved into an independent and influential charity. It is the only national patient-led organisation offering information and support to people with this condition and has a unique understanding of the patients’ experience.

Macmillan Cancer Support at Macmillan, they know how a cancer diagnosis can affect everything. So they are there to support you and help you take back some control in your life. From help with money worries and advice about work, to someone who’ll listen if you just want to talk, we’re here.

Marie Curie provides care and support for people living with any terminal illness and their families. They’ve been carrying out this viral work for over 65 years – in 2015 alone we cared for 40,000 people across the UK.

National Council for Palliative Care  is the umbrella charity for all those involved in palliative, end of life and hospice care in England, Wales and Northern Ireland. They believe that everyone approaching the end of life has the right to the highest quality of care and support, wherever they live, and whatever their condition is. They work with government, health and social care staff and people with personal experience to improve end of life care for all.

NHS – Lipoedema is a long-term (chronic) condition typically involving an abnormal build up of fat cells in the legs, thighs and buttocks. The condition occurs almost exclusively in women, although there have been rare cases reported in men.

NHS – Lymphoedema is a chronic (long term) condition that causes swelling in the body’s tissues. It can affect any part of the body but usually, develops in the arms or legs. Other symptoms of lymphoedema can include an aching, heavy feeling in affected body parts and difficulty moving them. Lymphoedema can get worse if it’s not treated, so you should speak to a doctor if you think you may have the condition.

NHS Healthy Eating site helps put you in charge of your health care.

NICE‘s role is to improve outcomes for people using the NHS and other public health and social care services. They do this by:
Producing evidence based guidance and advice for health, public health and social care practitioners.
Developing quality standards and performance metrics for those providing and commissioning health, public health and social care services.
Providing a range of informational services for commissioners, practitioners and managers across the spectrum of health and social care. 

Palliative Drugs palliative provides essential independent information for health professionals about drugs used in palliative and hospice care. It includes unauthorised indications and routes, and details about the administration of multiple drugs by continuous subcutaneous infusion.

Talk Lipoedema is a UK based organisation active across the UK. They’re there to provide benefit to sufferers of lipoedema and their carers through participating in various projects and increasing awareness of the disease. Whether you’ve just been diagnosed or are a long time sufferer, they are there to support you. They are based on one simple premise – that talking about lipoedema is a good thing and will benefit sufferers worldwide.

The British Lymphology Society BLS commenced in November 1985 and was originally called the British Lymphology Interest Group (BLIG). Since 1985 BLS has celebrated it’s 30 year anniversary in 2015 and has grown in both member, and it’s involvement in matters relating to lymphology. This has led BLS to comment on a number of documents relating to lymphoedema, and was even part of a House of Lords debate on Lymphoedema in September 2015. BLS continues to be a thriving and innovative charity that had delivered education for over 30 years. Their main education event is the annual conference, which is supported by the society’s objectives:

  1. To advance education and knowledge in the field of lymphology and related subjects.
  2. To foster interest in and co-ordinate a strategy for improving the management of chronic oedema, particularly lymphoedema.
  3. To produce and maintain a register of specialist centres in the United Kingdom and Ireland.
  4. To benefit patients by improving the knowledge, expertise and skills of health care professionals.